Alannahs-storyLeo’s Story

There is a word I never ever want to hear again at the start of a sentence from a medical professional: “Unfortunately”. Leo was born with unilateral cleft lip only (intact palate). Read Leo’s Story

Stephen’s Story

Before Stephen was born I worried about a lot of things. Stephen was born with cleft lip and palate and was fitted with a NAM. Read Stephen’s Story

Kyle’s Story

We went to the 20wk scan excited to see our baby and find out if it was a boy or girl. Read Kyle’s Story

Oliver’s Story

Oliver’s unilateral cleft lip and palate was detected at the 20 week scan. Read Oliver’s Story

Aidan’s Story

Within a few minutes of him being born the midwife said “oh oh” (not something you want to hear when you’ve just given birth). Read Aidan’s Story

Alannah’s Story

Hi my name is Alannah. I am 11 years old and I live with my mum, dad and my little sister. Read Alannah’s Story

Taj’s Story

Finding out we were pregnant for the first time was one of the most memorable days of my life. Read Taj’s Story

Per’s Story

Our son Per was born on 29 December 2005. When my water broke at three in the morning, I woke my husband, crazy with excitement and nerves. Read Per’s Story

Sahara’s Story

Sahara’s cleft lip and palate was discovered at my 20-week scan. Read Sahara’s Story

Bo’s Story

Bo was born in China with a cleft lip and palate. Read Bo’s Story

Alyssa’s Story

Hello :-) My name is Alyssa and I am 17 years old. Read Alyssa’s Story

Kelly’s Story

On the day of my operation, my parents came with me to the hospital. Read Kelly’s Story

Eve’s Story

When Danielle discovered she was pregnant four years ago, she had a dream it would be twins. Read Eve’s Story


These family stories offer individual perspectives on each family’s cleft journey. Your experience may be similar or very different.